I read an article that says that with prenatal genetic testing, performed before the 24th week of gestation that indicates a fetus will potentially be born with Down’s Syndrome, means that 90 percent of such parents have/or will choose to abort that pregnancy.
This means that less children are being born with Down’s Syndrome, it is a disorder that can affect the bodily functions of the person affected, they can have thyroid disorders, mental retardation, heart defects, reflux, ear infections, sleep apnea and some obvious facial cues such as a round face with small chin, and eyes that are almond shaped with an upward slant at the outer corners, they may have shorter limbs than the average person along with poor muscle tone. Many people are fearful that they can not handle raising a special needs child who is affected by Down’s Syndrome because of ignorance of the disorder.
I wonder if by doing these prenatal genetic tests, parents are unprepared for the outcome of information. Finding out that your unborn child has a disease/disorder/illness is only the first step. What happens after that information is presented to the parents? This information has to be dealt with in some means or fashion. Sometimes there are procedures that can be performed on the unborn child to improve it’s health and well being; other times there is nothing to be done. This is when some people decide to choose abortion as opposed to raising a child with special needs. You can learn more about this disorder here: http://www.ndss.org/ or here: http://www.nads.org/pages_new/resources/down_orgs.html
Abortion is a forever decision…there is no do over. What happens when one half of the parents wants to choose life and one wants to abort? Or one wants to risk surgery or medical intervention and the other parent disagrees? These issues can cause unbelievable stress and frustration…not to mention spiritual unrest when faced with a life and death decision regarding their child when it goes against their religious beliefs. Time is often the catalyst for a hasty decision. There were examples in the news story that talked about women/couples that made the decision for abortion…only to have future interaction with an individual with Down’s Syndrome, only to say later that if they knew more about the condition maybe they would not have chosen abortion.
Every life has value…fear is such a strong emotion that I think it can cause people to make a decision about abortion that they may live to regret. If a person or couple truly feels that they are ill equipped to raise a child with Down’s Syndrom than I personally believe they should bring the child into the world and allow it to be adopted. There is no shortage of people who wish to adopt and to parent a child…many people feel a calling to parent special needs children. There are some people who consider the child born with Down’s Syndrome to be a “gift”; or to be endowed with an extra-ordinary ability to love unconditionally. We should all be born with such a condition which causes us to love unconditionally!
I’ve had the recent pleasure of “meeting” an extra-ordinary person with a calling on her life to teach communication skills through sign language to families. Louise Sattler is a very interesting person who has had a variety of experiences in different settings, including the educational field where she was a licensed school psychologist, which has enabled her to work with children and their families to develop strong and effective communication skills.
I met Louise through an online contest, believe it or not. It was run on Twitter. I happen to have won a poetry contest; and the prize, that I chose, was a DVD that made by Louise Sattler. Louise has a site called: http://www.signingfamilies.com/ . There you will find all kinds of information about Louise and what she does; but, I didn’t know all of that, when I won the DVD.
I chose that DVD because of the title and what I could potentially use it for. The title is, “Baby, Toddler, and Preschool Sign Language”. I work with children in several capacities and I liked the idea of learning some sign language just in case I needed to know it in the future. I was so excited when i got the DVD because, just watching it I could see the passion and the commitment that Louise had for teaching sign language to children and their families.
Bravery came over me and I approached Louise about doing an interview with me so that I could blog about what she does through her workshops, her speaking engagements and through her DVD’s. Louise agreed to do that and I thought that I would share the news of what she does because it helps so many people. By teaching sign language as a way of communicating it allows families to be more effective in advocating for their special needs loved ones.
http://www.signingfamilies.com/ caters to those who live and work with individuals with special education needs. Signing isn’t just for the deaf communities…people who struggle with many issues of disability can benefit from communicating through sign language. So if you work in education, in health- care, daycare, foster care, adoption, or you have a business or a family member who is impacted…this is a great way to brush up your communication skills so that you can strengthen your ability to communicate effectively in your relationships.
If you would like to contact Louise Sattler about her programs & her work she can be reached at Louise@SigningFamilies.com; or, you can contact her to do a workshop, give an interview or a presentation by calling her business line at: 410-715-9647 . Louise is also on Twitter: http://twitter.com/Louiseasl . She is very down to earth and she also teaches in Spanish-she is bi-lingual. Ask her about her programs….tell her that Writewhereyouare sent you and you will get a discount. You can purchase her DVD’s at her site: http://www.SigningFamilies.com/ or here on Amazon. com: http://bit.ly/913i5/.
You can always stop by and see me also at: http://www.writewhereyouareblog.com/ .